Bring the light of day to the AHCA bill before next week’s Senate vote

Bonnie camping at Crane Prairie Area

Bonnie camping at Crane Prairie Area

Like many seventh-grade students, I’m obsessed with Minecraft. I enjoy camping, skateboarding, and riding my bike. My dream is to be an astrophysicist.

I also happen to experience arthrogryposis multiplex congenita.

My joints were contracted when I was born. I have weak muscles and am unable to swallow. I’m fed through a tube.

Like my classmates, I’m focused on school.

But I’m also worried about losing basic supports that I need to live my life. 

Next week the Senate will vote on the AHCA. The bill’s cuts to Medicaid would be devastating for me. I could lose my support services and access to adaptive equipment.

Thanks to Medicaid, I have personal support workers who take me for walks and bike rides, and attend musicals. They also help me with every day activities, like eating and getting dressed. They use my medical equipment to clear my lungs.

The AHCA threatens all of these supports that matter so much to me.

It’s already difficult to get adaptive equipment. I worry that if Medicaid is cut I won’t be able to get adult size equipment. I worry about the cost of my g-tube supplies.

Bonnie riding a bicycle wearing a purple helmet and scarf.

Bonnie riding her bicycle.

What can you do?

Call your Senators. Share your story. Create a video.

Share this OPB News piece that spotlighted my story with your family and friends.

What the Republican health bill means for Gresham family with disabled daughter.”

We’re running out of time. Your voice truly does matter.

Thank you,
Bonnie Burch
Gresham, Oregon


Take Action

Call.

  • Call your Senators: 866-426-2631 (English); 877-736-7831 (Spanish)
  • Share why you oppose this bill.
  • Explain what Medicaid means to your life.

Tell your story.

Submit your video.
  • Upload your video to YouTube and submit via this form

Key Messages

These parts of the AHCA will weaken Medicaid and hurt people with disabilities:

  • Per capita caps and block grants
  • Elimination of pre-existing condition protections
  • Elimination of “essential health benefits” requirement

Oregon Organizations Unite

The following Oregon organizations sent a letter to Senators Wyden and Merkley warning them that the AHCA will harm Oregonians with disabilities.

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