Like many seventh-grade students, I’m obsessed with Minecraft. I enjoy camping, skateboarding, and riding my bike. My dream is to be an astrophysicist.
I also happen to experience arthrogryposis multiplex congenita.
My joints were contracted when I was born. I have weak muscles and am unable to swallow. I’m fed through a tube.
Like my classmates, I’m focused on school.
But I’m also worried about losing basic supports that I need to live my life.
Next week the Senate will vote on the AHCA. The bill’s cuts to Medicaid would be devastating for me. I could lose my support services and access to adaptive equipment.
Thanks to Medicaid, I have personal support workers who take me for walks and bike rides, and attend musicals. They also help me with every day activities, like eating and getting dressed. They use my medical equipment to clear my lungs.
The AHCA threatens all of these supports that matter so much to me.
It’s already difficult to get adaptive equipment. I worry that if Medicaid is cut I won’t be able to get adult size equipment. I worry about the cost of my g-tube supplies.
What can you do?
Call your Senators. Share your story. Create a video.
Share this OPB News piece that spotlighted my story with your family and friends.
We’re running out of time. Your voice truly does matter.
- Call your Senators: 866-426-2631 (
English); 877-736-7831 ( Spanish)
- Share why you oppose this bill.
- Explain what Medicaid means to your life.
Tell your story.
- Rooted in Rights and the National Council on Independent Living
are creating a video playlist to illustrate in vivid human terms what’s at stake if the AHCA passes the Senate. #Iamapreexistingcondition
- Upload your video to YouTube and submit via this form
These parts of the AHCA will weaken Medicaid and hurt people with disabilities:
- Per capita caps and block grants
- Elimination of pre-existing condition protections
- Elimination of “essential health benefits” requirement
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