Stop cuts to in-home care

A young boy wearing a blue t-shirt and a striped shirt sitting in a wheelchair. His mother kneels beside him with her arm around him, their faces close. Both are smiling at the camera.

Oregonians have always been willing to help and encourage parents to raise their children. Our history and values have taught us that supporting families to give their children the best start in life helps us all.

The intellectual and developmental disabilities (IDD) in-home services children’s program grew out of our shared value that people with disabilities should not be isolated in institutions, cut off from the rest of the community. These services help many children stay in their family home, maintain connections to their family and community, live richer lives, and achieve better life-long outcomes.

Currently, all children who are eligible for IDD services – regardless of family income – are eligible to receive in-home services. This helps 3,000 children with IDD live at home with their families. 

Currently, all children who are eligible for IDD services – regardless of family income – are eligible to receive in-home services. This helps 3,000 children with IDD live at home with their families.

Proposed Cuts

The Office of Developmental Disabilities Services (ODDS) is proposing to cut services to roughly 1,000 of these children. These changes threaten to separate these children from their families and communities, leaving lasting trauma. The changes may also increase the cost to support the children in crisis, who may ultimately be placed in residential facilities.

ODDS plans to first limit the number of children coming into the IDD system and then to cut children already using IDD services. ODDS proposes making these reductions in two phases.

Phase 1

Beginning July 1, 2018, ODDS will cap the number of children served. Children whose family income is more than 138 percent of the federal poverty level (FPL) ($34,000 for a family of four) will be affected. Any children seeking services after the cap is in place will go on a wait list and will not receive services until a slot opens. ODDS estimates that 50 to 60 children will be wait-listed every month. These children will still be eligible for services in residential facilities.

Phase 2

One-Third of Families Will Lose In-Home Services

Starting in 2019, ODDS will end in-home services for children whose families make more than 138 percent of FPL. This will cut in-home services completely for approximately one third of the families currently using services.

Without access to services, these families will be faced with difficult decisions if their child goes into crisis. They may impoverish their family to qualify for services, or place their child in a residential facility. More than 1,000 children could lose services, be pushed into residential facilities, or be pushed into poverty.

Children Will Lose Access to Health Benefits through Oregon Health Plan (OHP)

These children will lose all Medicaid-funded benefits. This means that many children will also lose access to health insurance under the Oregon Health Plan (OHP).

Families Impacted by Cuts:

  • In Phase 1, families, who have income over 138 percent of PFL and are not currently receiving IDD services, will be will be placed on a wait list for in-home services.
  • In Phase 2, families, who have income over 138 percent of PFL, will have their children cut from in-home services.

Families Not Impacted by Cuts:

  • Families using the Children’s Intensive In-Home Supports (CIIS).
  • Lower income families (with income below 138 percent of FPL). These families will still be able to access in-home services.
  • Children with IDD, regardless of family income, will have access to services in residential facilities.

What can you do?

Call Your Legislators

If you are worried that your family might lose access to IDD services because of these potential eligibility changes, share your story!

Contact your legislator today and tell them:

  • Your name
  • Where you live
  • A sentence or two about the IDD services that help your family or that your child relies on to be safe and supported in your community.
  • What your life would be like if your child lost IDD services due to eligibility changes.

You can contact your local legislative office to make an appointment with them in your district.  You can find each legislator’s contact information on the Oregon Legislature webpage.

Ask your legislators to tell ODDS not to cut families off of services. Tell them to:

  • Keep children with disabilities living in their family homes
  • Keep the current program rules
  • Oppose any changes to eligibility that cut services

State capitol with fountains in the foreground

Share Your Story with Us

Tell us your story. We’d like to hear how vital in-home services are to your children, and what you would do if ODDS’ proposed changes went into effect.

We’d also like to hear about families’ experiences before all children, regardless of income, were able to be served in their own homes.

More Information

To learn more, watch the ODDS Director’s testimony from September 19 and November 14 and read ODDS’ presentation to the legislature (pages 5-8).

Most recently, the ODDS Director testified before the Ways and Means Committee on January 11Oregon Council on Developmental Disabilities’ Policy Director Leslie Sutton testified against the proposed cuts at that hearing.

Parent advocate Dianna Hansen, Executive Director of the Central Oregon Disability Support Network also testified. Professionally, Dianna works with hundreds of families across Eastern and Central Oregon. Personally, her youngest daughter experiences a disability and receives ODDS services.

Please also check out the Oregon Developmental Disabilities Coalition’s GO! Bulletin about ODDS’ plan.

 

 

Questions? 

If you have a legal question related to your services, please submit a request through our Intake Form.

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